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…at least for as long as it takes to write this post! 😉 **whine alert** I try to keep a positive attitude and I try to remember that a LOT of people with VF are a LOT sicker than I.  And that there are other ailments/diseases that are deadlier and that I’m damned lucky that…

There’s not much that makes eating well easier than getting a scary diagnosis! When I realized I was at a higher risk for dissemination because I’m a diabetic and I was on oral steroids for about a month during the initial phase of my VF pneumonia, I decided I was going to eat as well…

I haven’t updated in several days so thought I should.  I won’t remember a lot of the daily details once time has passed.  I have days where I’m pleasantly surprised with how greatgood I feel and then I have days where I can’t really get out of bed.  I’m still sticking to my routine of…

I slept well last night for the first time in a very, very long time. I decided to vary my “foot of the bed” position and I propped myself up on my pillows and an extra comforter. I was able to be upright enough not to deal with the horrid reflux I’ve been getting from…

Ugh.  I’m really having a hard time wrapping my head around the fact that I’m going to potentially feel this way for a loooooong time. I’m surviving.  My asthma/breathing seem better.  I’m less short of breath and cough less often.  I have eliminated my daily afternoon nap.  I’m tired but able to stay awake as…